Comments for blog.Bioethics.gov http://blog.bioethics.gov The blog of the Presidential Commission for the Study of Bioethical Issues Mon, 17 Jun 2013 22:23:17 +0000 hourly 1 Comment on Commission’s “Moral Science” Report Making an Impact by Prepagos Medellin http://blog.bioethics.gov/2012/11/20/commission%e2%80%99s-moral-science-report-making-an-impact-2/#comment-93754 Prepagos Medellin Mon, 17 Jun 2013 22:23:17 +0000 http://blog.bioethics.gov/?p=460#comment-93754 We continue to monitor responses to the Moral Science report with interest. In its final point in the report the Commission recommended that the government respond directly to the Commission’s recommendations, either with changes to the status quo or reasons for maintaining it.

]]> Comment on Hunter College High School Students Visit the Bioethics Commission by Marcus Taylor http://blog.bioethics.gov/2013/05/22/hunter-college-high-school-students-visit-the-bioethics-commission/#comment-93585 Marcus Taylor Fri, 31 May 2013 13:55:05 +0000 http://blog.bioethics.gov/?p=682#comment-93585 I truly appreciate the opportunity that the Commission has given to the students of Hunter College High, specially given the importance that bioethics have and will have more prominently in the near future. Thanks!

]]> Comment on Hunter College High School Students Visit the Bioethics Commission by Michael Norwich http://blog.bioethics.gov/2013/05/22/hunter-college-high-school-students-visit-the-bioethics-commission/#comment-93190 Michael Norwich Thu, 23 May 2013 16:52:45 +0000 http://blog.bioethics.gov/?p=682#comment-93190 As a parent of one of the students who visited, I want to sincerely thank you for providing these students such a special opportunity. I know through our son Isaac just how seriously they planned for this trip and how hard they prepared for each meeting. As a result they came away highly enthused.
Thank you
Michael Norwich

]]> Comment on A Discussion on the Ethics of Incidental Findings by Todd B. Zoltan, MD, JD http://blog.bioethics.gov/2013/04/30/a-discussion-on-the-ethics-of-incidental-findings/#comment-92840 Todd B. Zoltan, MD, JD Mon, 20 May 2013 23:16:08 +0000 http://blog.bioethics.gov/?p=653#comment-92840 This is a classic case of how the boundaries of our moral/ethical duty go beyond that of our legal duty. Any testing done, whether research, direct-to-consumer or clinical that finds indidental findings has a moral duty to inform the patient. There may not be legal duty to warn in certain circumstances but morally any person or organization with information that is relevant to a person’s health needs to share such information, regardless of fiduciary duty or otherwise.

]]> Comment on Privacy and Progress Inspires California Genetic Information Privacy Bill by Damian http://blog.bioethics.gov/2013/03/12/privacy-and-progress-inspires-california-genetic-information-privacy-bill/#comment-92597 Damian Sat, 18 May 2013 10:36:58 +0000 http://blog.bioethics.gov/?p=526#comment-92597 Everything is very open with a very clear description of the challenges.
It was really informative. Your site is extremely helpful.
Thank you for sharing!

]]> Comment on Commission builds database of scientific trials by Annett http://blog.bioethics.gov/2011/08/30/commission-builds-database-of-scientific-trials/#comment-91572 Annett Fri, 03 May 2013 00:47:22 +0000 http://blog.bioethics.gov/?p=197#comment-91572 Good day very cool web site!! Guy .. Excellent ..

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]]> Comment on Tools for Studying the Infamous Guatemala STD Research by Sti Clinic Blackpool http://blog.bioethics.gov/2012/11/15/tools-for-studying-the-infamous-guatemala-std-research/#comment-91546 Sti Clinic Blackpool Thu, 02 May 2013 18:19:23 +0000 http://blog.bioethics.gov/?p=449#comment-91546 Thank you for sharing your thoughts. I truly appreciate your efforts and I will be waiting for your next post thank you
once again.

]]> Comment on Empowering Patients through Informed Consent by Amanda http://blog.bioethics.gov/2012/11/09/empowering-patients-through-informed-consent/#comment-91459 Amanda Wed, 01 May 2013 13:10:16 +0000 http://blog.bioethics.gov/?p=446#comment-91459 With the kind of environment that we have now more doubts and question are coming out. Thanks for the empowering words in this blog that help me cope every question I have.

]]> Comment on Considering Opt In vs. Opt Out Consent Procedures in WGS Research by Prepagos Medellin http://blog.bioethics.gov/2012/12/06/considering-opt-in-vs-opt-out-consent-procedures-in-wgs-research/#comment-90835 Prepagos Medellin Thu, 18 Apr 2013 18:19:37 +0000 http://blog.bioethics.gov/?p=475#comment-90835 In some contexts, it might be more advantageous to use a consent process that makes it easier for individuals to participate. For example, organ donation policies in Europe, which uses an opt out consent model, have donation rates over 99 percent, as opposed to a 44 percent donation rate in the United States, which uses an opt in model. Although the Commission recognizes the substantial public benefit of widespread participation in whole genome sequencing research, the Commission firmly believes that the most important issue in respecting persons is not the type of consent obtained, but rather that the consent is properly informed and consistent with voluntary choice.

]]> Comment on Applying lessons learned in Guatemala to research today: Exploring the PCSBI Study Guide by Prepagos Medellin http://blog.bioethics.gov/2012/12/19/applying-lessons-learned-in-guatemala-to-research-today-exploring-the-pcsbi-study-guide/#comment-90834 Prepagos Medellin Thu, 18 Apr 2013 18:18:58 +0000 http://blog.bioethics.gov/?p=489#comment-90834 U.S. history with resources that lend the case context, including how researchers planned and carried out the Guatemala experiments. The inclusion of primary sources right in the text of the Study Guide allows students to see an example of an historical investigation and its place within the interdisciplinary practices of bioethicists. Instructors new to teaching ethics will find an array of materials to choose from, starting with a sampling of basic research ethics texts and resources to introduce students to the work of previous presidential bioethics commissions and the ethical foundations of research regulation. Subsequent sections allow instructors to pick and choose topics that fit with the course design they have in mind.

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