The blog of the Presidential Commission for the Study of Bioethical Issues

Posts in category: Whole Genome Sequencing

Ethically Sound Episode 10: Charting a Path Forward

The tenth and final episode of the Bioethics Commission’s podcast series, Ethically Sound, is now available. Today’s episode, “Charting a Path Forward,” focuses on the Bioethics Commission’s two most recent public meetings, during which the Bioethics Commission reflected on the impact of past, present, and future of national bioethics advisory bodies.

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Ethically Sound Episode 6: New Directions

The Presidential Commission for the Study of Bioethical Issues bioethics_twitter-v3-08(Bioethics Commission) has
released the sixth episode, “New Directions”, in its new
podcast series Ethically Sound. This podcast series is dedicated to bringing the Bioethics Commission’s body of work to a broad audience. The Bioethics Commission, established in 2009 by President Bara
ck Obama, has produced 10 reports, each of which focuses on key ethical considerations surrounding a particular topic. Today’s episode is based on the Bioethics Commission’s first report, New Directions: The Ethics of Synthetic Biology and Emerging Technologies.

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Ethically Sound Episode 4: Privacy and Progress

The Bioethics Commission has released the fourth episode, “Privacy and Progress,” in its new podcast series Ethically Sound. Privacy and Progress addresses complex privacy concerns related to a powerful and newly accessible technology. Whole genome sequencing has evolved from an ambitious scientific aspiration to a readily available technique with tremendous potential to advance clinical care and medical research.

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Bioethics Commission Staff Holds Multidisciplinary Educational Materials Webinar

The Presidential Commission for the Study of Bioethics Issues (Bioethics Commission) recently hosted a webinar entitled “Multidisciplinary Implementation of Bioethics Commission Education Materials.” In the hour-long presentation, three Bioethics Commission staff members (including myself) demonstrated how the Commission’s educational materials can be used in three different settings: a philosophy course, a biology course, and a […]

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Bioethics Commission to Host Webinar Demonstrating Educational Modules

The Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) is committed to developing resources to improve bioethics education. On Thursday, April 24, 2014 the Bioethics Commission will hold a public webinar demonstrating and discussing how the educational modules developed by the Commission and based on Commission reports can be applied in a variety […]

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Bioethics Commission staff discuss the multidisciplinary implementation of Commission education modules at APPE

Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) staff members Misti Ault Anderson, M.S., M.A., Karen Meagher, Ph.D., and Nicolle Strand, J.D., M. Bioethics, have just returned from Jacksonville, Florida after a successful presentation at the Twenty-third Annual International Conference of the Association for Practical and Professional Ethics (APPE). As part of the […]

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Informed Consent in the Bioethics Commission’s Work

The bioethical principle of respect for persons has played a central role in the deliberations and work of the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission), especially in its recent report, Anticipate and Communicate: Ethical Management of Incidental and Secondary Findings in the Clinical, Research, and Direct-to-Consumer Contexts. The principle of respect […]

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Promoting “Privacy and Progress” at APHA

After returning from the American Society for Bioethics and Humanities (ASBH) annual meeting in Atlanta last week, Kayte Spector-Bagdady, Associate Director at the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission), is gearing up for another presentation at the American Public Health Association (APHA) meeting in Boston this week. As part of the […]

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See you at APHA in Boston

The Presidential Commission for the Study of Bioethical Issues (the Bioethics Commission) will be participating in the 141st Annual Meeting and Exposition of the American Public Health Association in Boston, Mass. We look forward to seeing you at the following sessions: Panel Session – Enumerating Ethical Considerations of Medical Countermeasure Research with Children (3442.0) at […]

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See you at ASBH in Atlanta

The Presidential Commission for the Study of Bioethical Issues (the Bioethics Commission) will be participating in the American Society for Bioethics and Humanities (ASBH) 15th Annual Meeting in Atlanta, Ga. We look forward to seeing you at the following sessions: Plenary Session, Friday, 9:15 a.m. A Conversation with Amy Gutmann, Chair, Ph.D., Presidential Commission for […]

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This is a space for the members and staff of the Presidential Commission for the Study of Bioethical Issues to communicate with the public about the work of the commission and to discuss important issues in bioethics.

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