The blog of the Presidential Commission for the Study of Bioethical Issues

Posts in category: Whole Genome Sequencing

Bioethics Commission to Host Webinar Demonstrating Educational Modules

The Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) is committed to developing resources to improve bioethics education. On Thursday, April 24, 2014 the Bioethics Commission will hold a public webinar demonstrating and discussing how the educational modules developed by the Commission and based on Commission reports can be applied in a variety […]

Bioethics Commission staff discuss the multidisciplinary implementation of Commission education modules at APPE

Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) staff members Misti Ault Anderson, M.S., M.A., Karen Meagher, Ph.D., and Nicolle Strand, J.D., M. Bioethics, have just returned from Jacksonville, Florida after a successful presentation at the Twenty-third Annual International Conference of the Association for Practical and Professional Ethics (APPE). As part of the […]

Informed Consent in the Bioethics Commission’s Work

The bioethical principle of respect for persons has played a central role in the deliberations and work of the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission), especially in its recent report, Anticipate and Communicate: Ethical Management of Incidental and Secondary Findings in the Clinical, Research, and Direct-to-Consumer Contexts. The principle of respect […]

Promoting “Privacy and Progress” at APHA

After returning from the American Society for Bioethics and Humanities (ASBH) annual meeting in Atlanta last week, Kayte Spector-Bagdady, Associate Director at the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission), is gearing up for another presentation at the American Public Health Association (APHA) meeting in Boston this week. As part of the […]

See you at APHA in Boston

The Presidential Commission for the Study of Bioethical Issues (the Bioethics Commission) will be participating in the 141st Annual Meeting and Exposition of the American Public Health Association in Boston, Mass. We look forward to seeing you at the following sessions: Panel Session – Enumerating Ethical Considerations of Medical Countermeasure Research with Children (3442.0) at […]

See you at ASBH in Atlanta

The Presidential Commission for the Study of Bioethical Issues (the Bioethics Commission) will be participating in the American Society for Bioethics and Humanities (ASBH) 15th Annual Meeting in Atlanta, Ga. We look forward to seeing you at the following sessions: Plenary Session, Friday, 9:15 a.m. A Conversation with Amy Gutmann, Chair, Ph.D., Presidential Commission for […]

NIH Requests Comment on Genomic Data Sharing Policy Draft

Last month, the National Institutes of Health (NIH) published a draft version of its new genomic data sharing policy, along with a request for public comment. The draft policy parallels some of the concepts and recommendations discussed in the Presidential Commission for the Study of Bioethical Issues’ (Bioethics Commission) 2012 report: Privacy and Progress in […]

Bioethics Commission Executive Director Featured on Genetic Alliance Webinar

The Genetic Alliance recently posted a webinar featuring Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) Executive Director Lisa M. Lee. The webinar examined some of the ongoing and timely issues raised by to the Bioethics Commission report Privacy and Progress in Whole Genome Sequencing. Lee was joined by Kelly Edwards, Acting Associate […]

Member Spotlight: Raju Kucherlapati

“Growing up, I thought of the United States as a shining beacon of hope. I came here as a nobody, but this country has given me so much,” Raju Kucherlapati, Ph.D., said. President Obama appointed Kucherlapati to the Presidential Commission for the Study of Bioethical Issues (the Bioethics Commission) in April 2010 because of Kucherlapti’s […]

Privacy and Progress and the Deidentification of Whole Genome Sequence Data

In the most recent issue of the Hastings Center Report, Drs. Amy Gutmann, and James Wagner of the Presidential Commission for the Study of Bioethical Issues (the Bioethics Commission), contributed to the lively debate surrounding the identifiability of genetic data. In Found Your DNA on the Web: Reconciling Privacy and Progress, Gutmann and Wagner, Chair […]

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This is a space for the members and staff of the Presidential Commission for the Study of Bioethical Issues to communicate with the public about the work of the commission and to discuss important issues in bioethics.

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