The blog of the Presidential Commission for the Study of Bioethical Issues

Posts in category: Incidental findings

New Educational Primers to Accompany Anticipate and Communicate

As part of its ongoing effort to support bioethics education, the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) has developed and posted to Bioethics.gov a new primer to inform institutional review boards (IRBs) and their members on the ethical management of incidental and secondary findings. The Bioethics Commission designed the IRB Primer to aid IRB […]

New Video Highlights the Need for a Plan When it Comes to Incidental Findings

The Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) has posted its latest video, in which Commission Members discuss their report Anticipate and Communicate: Ethical Management of Incidental and Secondary Findings in the Clinical, Research, and Direct-to-Consumer Contexts. In the three minute piece, Members highlight the essential message of the report on the […]

New Educational Module Available on Informed Consent for Anticipate and Communicate

The Presidential Commission for the Study of Bioethical Issues (the Bioethics Commission) has just posted to Bioethics.gov a new educational module on informed consent in the management of incidental and secondary findings. The module integrates material from the Bioethics Commission’s December 2013 report Anticipate and Communicate: Ethical Management of Incidental and Secondary Findings in the […]

Bioethics Commission Continues to Recognize Value of Empirical Bioethics Research

In its recent report, Anticipate and Communicate: Ethical Management of Incidental and Secondary Findings in the Clinical, Research, and Direct-to-Consumer Contexts, the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) emphasized once more the importance of empirical research to support sound policy.  Specifically, the Bioethics Commission recommended that federal agencies and other interested […]

Anticipating and Communicating Through Education

Since its inception, the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) has repeatedly recommended that ethics education be widely available at the undergraduate, graduate, and professional levels. In Anticipate and Communicate: Ethical Management of Incidental and Secondary Findings in the Clinical, Research, and Direct-to-Consumer Contexts, the Bioethics Commission made the broad recommendation […]

Informed Consent in the Bioethics Commission’s Work

The bioethical principle of respect for persons has played a central role in the deliberations and work of the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission), especially in its recent report, Anticipate and Communicate: Ethical Management of Incidental and Secondary Findings in the Clinical, Research, and Direct-to-Consumer Contexts. The principle of respect […]

Ethics in Context: Anticipating and Communicating Incidental and Secondary Findings in the Direct-to-Consumer Context

In Anticipate and Communicate: Ethical Management of Incidental and Secondary Findings in the Clinical, Research, and Direct-to-Consumer Contexts, the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) explored the ethical issues surrounding incidental and secondary findings arising in a variety of settings, including the direct-to-consumer (DTC) context. A growing number of DTC companies […]

Anticipating and Communicating Incidental and Secondary Findings in Research

Incidental findings can arise during the course of some research studies involving human participants, presenting ongoing challenges for researchers. For example, some imaging technologies such as magnetic resonance imaging (MRI) or ultrasound can reveal aspects of a research participant’s physiology outside the area of interest to researchers. The research setting is distinct, warranting ethical guidance […]

Incidental Findings in the Clinical Context

In its recent report, Anticipate and Communicate: Ethical Management of Incidental and Secondary Findings in the Clinical, Research, and Direct-to-Consumer Contexts, the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) made recommendations for practitioners in each of these three contexts, as well as several overarching recommendations. This blog post will outline the distinctive […]

Core Principles: Anticipation and Communication of Incidental and Secondary Findings

In its recent report, Anticipate and Communicate: Ethical Management of Incidental and Secondary Findings in the Clinical, Research, and Direct-to-Consumer Contexts, the Presidential Commission for the Study of Bioethical Issues’s (Bioethics Commission) ethical analysis relies on a core set of principles consistently outlined in its work. The four common principles—respect for persons, beneficence, justice and […]

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