The blog of the Presidential Commission for the Study of Bioethical Issues

Posts in category: Incidental findings

Ethically Sound Episode 10: Charting a Path Forward

The tenth and final episode of the Bioethics Commission’s podcast series, Ethically Sound, is now available. Today’s episode, “Charting a Path Forward,” focuses on the Bioethics Commission’s two most recent public meetings, during which the Bioethics Commission reflected on the impact of past, present, and future of national bioethics advisory bodies.

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PRIM&R Conference Update: Research Ethics and Incidental and Secondary Findings

Recently, the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) facilitated a didactic workshop session at the Public Responsibility in Medicine and Research (PRIM&R) Advancing Ethical Research Conference. This past Saturday, December 6, Bioethics Commission staff led the workshop IRB Primer: Incidental and Secondary Findings. The presentation provided an overview of the Commission’s […]

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Bioethics Commission to Offer Presentations at ASBH This Week

The Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) is pleased to offer multiple presentations at the American Society for Bioethics and the Humanities (ASBH) Annual Meeting, scheduled for October 16-19 in San Diego, Calif. Over the course of the four day conference Bioethics Commission staff will highlight a number of bioethical issues, […]

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The Bioethics Commission’s Work on Incidental and Secondary Findings and the Applications for Neuroscience

Today, Senior Policy and Research Analyst Elizabeth Pike will present on behalf of the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) at the conference “Emerging Ethical and Legal Challenges in Chronic Neurological Conditions.” The presentation is part of a two-day conference held at the Cleveland Clinic’s Global Center for Health Innovation and […]

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Bioethics Commission Anticipates and Communicates in Webinar on Incidental and Secondary Findings

Two staff members of the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) will lead the October 2014 webinar for Public Responsibility in Medicine and Research (PRIM&R). Elizabeth Pike, J.D., L.L.M., Senior Policy and Research Analyst, and Nicolle K. Strand, J.D., M. Bioethics, Research Analyst, will present “Anticipate and Communicate for IRBs: Ethical […]

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New Incidental Findings Conversation Series for Patients, Research Participants, and Consumers

The Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) has just released a set of educational materials on incidental findings that it developed for patients, research participants, and consumers. In early May, the Bioethics Commission released primers to guide clinicians, researchers, and direct-to-consumer (DTC) companies – health professionals who manage these types of […]

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Now Available: Set of Primers for Practitioners on Management of Incidental and Secondary Findings

To continue its support of bioethics education, the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) has developed and posted to Bioethics.gov a new set of primers to inform a variety of practitioners on the ethical management of incidental and secondary findings. This new set of primers includes one for clinicians, one for […]

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New Educational Primers to Accompany Anticipate and Communicate

As part of its ongoing effort to support bioethics education, the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) has developed and posted to Bioethics.gov a new primer to inform institutional review boards (IRBs) and their members on the ethical management of incidental and secondary findings. The Bioethics Commission designed the IRB Primer to aid IRB […]

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New Video Highlights the Need for a Plan When it Comes to Incidental Findings

The Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) has posted its latest video, in which Commission Members discuss their report Anticipate and Communicate: Ethical Management of Incidental and Secondary Findings in the Clinical, Research, and Direct-to-Consumer Contexts. In the three minute piece, Members highlight the essential message of the report on the […]

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New Educational Module Available on Informed Consent for Anticipate and Communicate

The Presidential Commission for the Study of Bioethical Issues (the Bioethics Commission) has just posted to Bioethics.gov a new educational module on informed consent in the management of incidental and secondary findings. The module integrates material from the Bioethics Commission’s December 2013 report Anticipate and Communicate: Ethical Management of Incidental and Secondary Findings in the […]

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This is a space for the members and staff of the Presidential Commission for the Study of Bioethical Issues to communicate with the public about the work of the commission and to discuss important issues in bioethics.

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