The blog of the Presidential Commission for the Study of Bioethical Issues

Posts in category: Human Subjects Protection

Rock Ethics Institute Research Ethics Lecture on Postwar NIH Research Ethos and the Guatemala STD Experiments

“Ethically Impossible” STD Research in Guatemala from 1946 to 1948 details the federally-supported U.S. Public Health Service (PHS) experiments in Guatemala supporting STD prevention in the U.S. Armed Forces after World War II. By the time PHS researchers left in 1948, over 1,300 vulnerable Guatemalan subjects had been intentionally exposed to syphilis, gonorrhea, and/or chancroid […]

Educación Ética: La Guía de Estudio para “Éticamente Imposible” Investigación sobre ETS en Guatemala de 1946 a 1948.

La Comisión Presidencial para el Estudio de Cuestiones Bioéticas se complace a publicar la traducción en español de la Guía de Estudio para “Éticamente Imposible” Investigación sobre ETS en Guatemala de 1946 a 1948. En lo que actualmente se reconoce como un infame episodio en la historia de la ética de investigación, el Servicio de […]

See you at APHA in Boston

The Presidential Commission for the Study of Bioethical Issues (the Bioethics Commission) will be participating in the 141st Annual Meeting and Exposition of the American Public Health Association in Boston, Mass. We look forward to seeing you at the following sessions: Panel Session – Enumerating Ethical Considerations of Medical Countermeasure Research with Children (3442.0) at […]

See you at ASBH in Atlanta

The Presidential Commission for the Study of Bioethical Issues (the Bioethics Commission) will be participating in the American Society for Bioethics and Humanities (ASBH) 15th Annual Meeting in Atlanta, Ga. We look forward to seeing you at the following sessions: Plenary Session, Friday, 9:15 a.m. A Conversation with Amy Gutmann, Chair, Ph.D., Presidential Commission for […]

When an Incidental Finding Saves a Life

During today’s meeting of the Presidential Commission for the Study of Bioethical Issues (the Bioethics Commission), a panel of experts discussed the ethical considerations associated with incidental findings that arise during research. Alex John London, M.A., Ph.D., Professor of Philosophy at Carnegie Mellon began by noting “The researcher may have a duty to act in […]

Multiple steps must be taken before ethical pediatric anthrax vaccine trials can be considered

Today the Presidential Commission for the Study of Bioethical Issues concluded that the federal government would have to take multiple steps, including additional research in adults, before anthrax vaccine trials with children could be ethically considered by the U.S. government.  In its report released today, Safeguarding Children: Pediatric Medical Countermeasure Research, the Bioethics Commission responded to […]

Commission’s “Moral Science” Report Making an Impact

Less than a year after its release, the Commission’s report, Moral Science: Protecting Participants in Human Subjects Research, is having a noteworthy impact in the research community.  Recently, stakeholders have taken concrete steps to implement two of the Commission’s recommendations, namely, those concerning accountability through public access and promoting community engagement. As part of its […]

Tools for Studying the Infamous Guatemala STD Research

By now the story of Susan Reverby’s discovery of John Cutler’s papers is well known. In 2010, she revealed details of the Guatemala studies from the Public Health Service (PHS) doctor’s files, triggering an avalanche of media attention.  President Obama apologized to the President of Guatemala, and then directed the Presidential Commission for the Study […]

Compensation Expert Addresses Commission

In the course of its review of current human subjects research protections, the Presidential Commission for the Study of Bioethical Issues asked an international panel of experts to advise them on how the current system might be improved.  One of the recommendations of the international panel was that the U.S. government “should implement a system […]

Commission Calls for Transparency in U.S. Government-Funded Research

As the Presidential Commission for the Study of Bioethical Issues continued its assessment of current protections for human subjects in research at its public meeting in Boston this afternoon, Commission member, Christine Grady, proposed that the Commission recommend improving transparency in U.S. Government-funded research.  Grady said that federal agencies could develop systems – or improve […]

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This is a space for the members and staff of the Presidential Commission for the Study of Bioethical Issues to communicate with the public about the work of the commission and to discuss important issues in bioethics.

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