The blog of the Presidential Commission for the Study of Bioethical Issues

Author Archives: Victoria Wilbur

Bioethics Commission Executive Director to Receive Pellegrino Medal

Lisa M. Lee, Ph.D., M.S., Executive Director of the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission), will receive the Pellegrino Medal for her contributions to health care ethics. The award will be presented April 11 during the 2014 Conference of Samford University’s Healthcare Ethics and Law (HEAL) Institute in Birmingham, Ala. Established [...]

Anticipating and Communicating Through Education

Since its inception, the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) has repeatedly recommended that ethics education be widely available at the undergraduate, graduate, and professional levels. In Anticipate and Communicate: Ethical Management of Incidental and Secondary Findings in the Clinical, Research, and Direct-to-Consumer Contexts, the Bioethics Commission made the broad recommendation [...]

Educación Ética: La Guía de Estudio para “Éticamente Imposible” Investigación sobre ETS en Guatemala de 1946 a 1948.

La Comisión Presidencial para el Estudio de Cuestiones Bioéticas se complace a publicar la traducción en español de la Guía de Estudio para “Éticamente Imposible” Investigación sobre ETS en Guatemala de 1946 a 1948. En lo que actualmente se reconoce como un infame episodio en la historia de la ética de investigación, el Servicio de [...]

Ethics in Context: Anticipating and Communicating Incidental and Secondary Findings in the Direct-to-Consumer Context

In Anticipate and Communicate: Ethical Management of Incidental and Secondary Findings in the Clinical, Research, and Direct-to-Consumer Contexts, the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) explored the ethical issues surrounding incidental and secondary findings arising in a variety of settings, including the direct-to-consumer (DTC) context. A growing number of DTC companies [...]

Member Spotlight: Barbara Atkinson

President Obama appointed Barbara Atkinson, M.D., to the Presidential Commission for the Study of Bioethical Issues (the Bioethics Commission) in April 2010. Atkinson is Executive Vice Chancellor Emeritus at the University of Kansas Medical Center and Professor Emeritus of Pathology and Laboratory Medicine at the University of Kansas School of Medicine. She was elected to [...]

Considering Opt In vs. Opt Out Consent Procedures in WGS Research

When it comes to whole genome sequencing research, consent procedures can be complex, especially for the patient. Some patients could be unaware that their whole genome sequence data might be used in future research without additional consent. To highlight the issue, consider this hypothetical example: After a painful gallbladder attack, 27-year-old Cindy allowed surgeons to [...]

About blog.Bioethics.gov

This is a space for the members and staff of the Presidential Commission for the Study of Bioethical Issues to communicate with the public about the work of the commission and to discuss important issues in bioethics.

Learn more about the Presidential Commission for the Study of Bioethical Issues.

Subscribe

You can receive blog.Bioethics.gov posts via our RSS feed, or via email subscription.