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The blog of the Presidential Commission for the Study of Bioethical Issues

Author Archives: Victoria Wilbur

Considering Opt In vs. Opt Out Consent Procedures in WGS Research

Written by Victoria Wilbur on December 6, 2012 — 1 Comment

When it comes to whole genome sequencing research, consent procedures can be complex, especially for the patient. Some patients could be unaware that their whole genome sequence data might be used in future research without additional consent. To highlight the issue, consider this hypothetical example: After a painful gallbladder attack, 27-year-old Cindy allowed surgeons to [...]

Posted in Whole Genome Sequencing

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