The blog of the Presidential Commission for the Study of Bioethical Issues

Author Archives: Karen Meagher

Bioethics Commission’s New Recommendations Bolster Ethics Education

The Bioethics Commission has encouraged and supported bioethics education throughout its projects and activities. Our educational materials, related to our reports, are tailored reach a variety of audiences. As the Bioethics Commission nears the end of its tenure, the capstone report Bioethics for Every Generation: Deliberation and Education in Health, Science, and Technology ties together […]

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Roundtable Discussion: Bioethics Advisory Bodies Past, Present, and Future

The Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) closed its reflections on the impact of national bioethics advisory bodies with a roundtable discussion involving Commission members and the day’s presenters. Amy Gutmann, Ph.D., Chair of the Bioethics Commission, began the session by asking each panelist to articulate an important takeaway from the […]

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Additional Reflections on National Bioethics Advisory Bodies

The Bioethics Commission continued its discussion on the impact of bioethics advisory bodies, looking to the past to inform future efforts to address social and ethical dimensions of health, science, and technology policy. In the second panel of the day, the Bioethics Commission heard from a variety of speakers considering the past, present, and future […]

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Reflections on National Bioethics Advisory Bodies

At today’s meeting, the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) reflected on its own tenure and that of other bioethics advisory bodies. In the first panel session of the day, the Bioethics Commission heard from a series of speakers reflecting on the past, present, and future impact of national bioethics advisory […]

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Bioethics Commission Meeting 25: Live from Washington, DC

Welcome to Washington, DC for the 25th public meeting of the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission). The Bioethics Commission’s meeting is today, May 3, 2016, from 9 a.m. to 3:15 p.m. ET. Chair Dr. Amy Gutmann opened up the meeting by summarizing the Bioethics Commission’s forthcoming report focusing on key […]

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Bioethics Commission Meeting 24: Member Discussion of Future Educational Materials

Member discussion wrapped up the Bioethics Commission’s twenty-fourth meeting. During this session, members considered future plans for their educational materials. Plans include expanding on the over 50 educational tools currently available on the Bioethics Commission website. Members addressed new topics, audiences, and design of the educational resources. First, members considered possible future topics, including ethics […]

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Modernizing Human Subjects Research Protections: Legally Authorized Representatives and Consent Capacity

This is the last installment in a series of blog posts about recent proposed changes to the Common Rule, and how they relate to the work of the Bioethics Commission. The Common Rule currently requires permission from a legally authorized representative (LAR) to enroll participants who lack consent capacity in research. LARs consider and evaluate […]

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Bioethics Commission Recommends Further Research on Consent Capacity and Ethical Protections for Participants

In Gray Matters: Topics at the Intersection of Neuroscience, Ethics, and Society, the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) provided ethical analysis of three topics, including consent capacity and neuroscience research. More than one billion people globally, including millions of people in the United States, are affected by neurological disorders.[1] Neuroscience […]

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PRIM&R Conference Update: Research Ethics and Incidental and Secondary Findings

Recently, the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) facilitated a didactic workshop session at the Public Responsibility in Medicine and Research (PRIM&R) Advancing Ethical Research Conference. This past Saturday, December 6, Bioethics Commission staff led the workshop IRB Primer: Incidental and Secondary Findings. The presentation provided an overview of the Commission’s […]

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Anticipating and Communicating Incidental and Secondary Findings in Research

Incidental findings can arise during the course of some research studies involving human participants, presenting ongoing challenges for researchers. For example, some imaging technologies such as magnetic resonance imaging (MRI) or ultrasound can reveal aspects of a research participant’s physiology outside the area of interest to researchers. The research setting is distinct, warranting ethical guidance […]

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This is a space for the members and staff of the Presidential Commission for the Study of Bioethical Issues to communicate with the public about the work of the commission and to discuss important issues in bioethics.

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