The blog of the Presidential Commission for the Study of Bioethical Issues

Monthly Archives: May, 2012

Quotes: A discussion on whole genome sequencing

For more than a year, the Presidential Commission for the Study of Bioethical Issues has been examining privacy issues raised by the emergence of low-cost whole genome sequencing. The technological advances and jump in the use of the tests – the costs of whole genome sequencing could drop to less than $1000 this year – [...]

Weighing the risks of an anthrax study for children

On one side: Does enrolling children in an anthrax vaccine trial put them at risk? On the other: If there are no trials, does that put all children at risk in the event of an anthrax attack? The Presidential Commission for the Study of Bioethical Issues today heard several medical and ethical experts address the [...]

Biodefense board’s anthrax vote ‘wasn’t easy’

The chairman of the National Biodefense Science Board said today while his panel voted in favor of testing children with an anthrax vaccine prior to any anthrax threat, it also wanted a second opinion: an ethical review of doing the test. “We wrestled with giving a vaccine to children (that was) untested,” said John S. [...]

Sebelius: Ethical considerations critical in protecting children

Health and Human Services Secretary Kathleen Sebelius told the Presidential Commission for the Study of Bioethical Issues today that its consideration of ethical issues around protecting children in the event of a terrorist attack or a pandemic scare was critically important, calling children’s safety “our highest priority.” Sebelius asked the Commission early this year for [...]

Gutmann defines inquiry: Ethics on research with children

The issue of how to protect children in the event of a terrorist attack or other large-scale disaster has received some coverage in the media. But rarely discussed is a full airing of the ethical issues around such protection. Dr. Amy Gutmann, President of the University of Pennsylvania and Chair of the Presidential Commission for [...]

Live from Washington

Welcome to coverage of the Presidential Commission for the Study of Bioethical Issues today in Washington, D.C. The topics today will include issues surrounding how the country should best prepare to protect children in the event of a terrorist attack or other large-scale disaster. Guest speakers include Health and Human Services Secretary Kathleen Sebelius, who [...]

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This is a space for the members and staff of the Presidential Commission for the Study of Bioethical Issues to communicate with the public about the work of the commission and to discuss important issues in bioethics.

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